Supporting patients with ALD

Resources

Learn more about adrenal insufficiency, adrenoleukodystrophy (ALD), and cerebral ALD – and how early diagnosis could save lives¹

ALD Neurologist Brochure

Learn more about monitoring ALD and the progression to cerebral ALD

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ALD Endocrinologist Brochure

Learn more about recognizing and diagnosing ALD

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Test and Detect Early

Learn why adrenal insufficiency in young boys could be a red flag for ALD²

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Help your patients learn more about ALD, the importance of monitoring and building a care team.

Visit Navigating ALD for Patient Resources

Help your patients learn more about ALD, the importance of monitoring and building a care team.

Visit Navigating ALD for Patient Resources

References: 1. Moser HW, Mahmood A, Raymond GV. X‑linked adrenoleukodystrophy. Nat Clin Pract Neurol. 2007;3(3):140-151. 2. Bornstein SR, Allolio B, Arlt W, et al. Diagnosis and Treatment of Primary Adrenal Insufficiency: An Endocrine Society Clinical Practice Guideline. J Clin Endocrinol Metab. 2016;101(2):364-389.

Video Library

Learn more about ALD, the varied progression of the disease, the importance of early diagnosis, and how it all affects patients and familes.¹

Torrey family: Recognizing symptoms

Explore the signs and symptoms that led to an ALD diagnosis

Vutrano family: The difference of early diagnosis

Hear how newborn screening changed one child’s life

Corr family: The impact of ALD

Learn how Addison’s Disease led to a diagnosis of ALD for one family

Three steps: Recognize, Measure, and Consult

Pediatric Endocrinologist Bradley Miller touches on the three steps for initial identification and management of ALD

Monitoring for cerebral progression in ALD

Learn how Pediatric Endocrinologist Bradley Miller monitors for cerebral progression in patients with ALD

Importance of an integrated, multidisciplinary care team

Pediatric Endocrinologist Bradley Miller covers the roles and responsibilities of an ALD care team

Advocacy partners

Offer additional support to the families of children with ALD or cerebral ALD by connecting them with some of the following advocacy groups. This list is provided for reference only and is not intended as a comprehensive list of resources.

bluebird bio, Inc. is not responsible for the content provided by third party sites, nor does bluebird bio, Inc. endorse the content of these sites. This is not a comprehensive list of resources and it is provided for reference only.

These organizations can provide education and support to patients and families whose lives are affected by ALD.

Reach out to advocacy partners for additional resources and support.

Abbreviations: ALD, adrenoleukodystrophy