This disease education site is developed and is hosted by bluebird bio, Inc. No treatment decisions should be based on such information. This site is intended for use by US health care professionals only.
Supporting Patients with
Healthcare Professional Resources
Learn more about adrenal insufficiency, adrenoleukodystrophy (ALD), and cerebral ALD—and how early diagnosis could save lives.1
ALD Neurologist Brochure
Learn more about monitoring ALD and the progression to cerebral ALD
Learn more about ALD, the varied progression of the disease, the importance of early diagnosis, and how it all affects patients and familes.1
Vutrano family: The difference of early diagnosis
Learn how newborn screening changed one child’s life
Three steps: Recognize, Measure, and Consult
Pediatric Endocrinologist Bradley Miller touches on the three steps for initial identification and management of ALD
Monitoring for cerebral progression in ALD
Learn how Pediatric Endocrinologist Bradley Miller monitors for cerebral progression in patients with ALD
Offer additional support to the families of children with ALD or cerebral ALD by connecting them with some of the following advocacy groups. This list is provided for reference only and is not intended as a comprehensive list of resources.
bluebird bio, Inc. is not responsible for the content provided by third party sites, nor does bluebird bio, Inc. endorse the content of these sites. This is not a comprehensive list of resources and it is provided for reference only.
These organizations can provide education and support to patients and families whose lives are affected by ALD.
Reach out to advocacy partners for additional resources and support.